Caring for a person with Alzheimer’s disease can have high physical, emotional, and financial costs. The demands of day-to-day care, changes in family roles, and decisions about placement in a care facility can be difficult. There are several evidence-based approaches and programs that can help, and researchers are continuing to look for new and better ways to support caregivers.
Becoming well-informed about the disease is one important strategy. Programs that teach families about the various stages of Alzheimer’s and about ways to deal with difficult behaviors and other caregiving challenges can help.
Good coping skills, a strong support network, and respite care are other ways to help caregivers handle the stress of caring for a loved one with Alzheimer’s disease. For example, staying physically active provides physical and emotional benefits.
Some caregivers have found that joining a support group is a critical lifeline. These support groups allow caregivers to find respite, express concerns, share experiences, get tips, and receive emotional comfort. Many organizations sponsor in-person and online support groups, including groups for people with early-stage Alzheimer’s and their families.
Caregiving Tip Sheets and Resource Lists
CaringKind Resources
Sleep Manual: A Virtual Manual for Nine Ways to Better Sleep
Source: Alzheimer's Disease Education and Referral Center
Behaviors
- Coping with Agitation and Aggression
- Hallucinations, Delusions, and Paranoia
- Communication and Behavior Problems: Resources for Alzheimer’s Caregivers
- Managing Personality and Behavior Changes
- Rummaging and Hiding Things
- Sundowning
Everyday Care
- Bathing
- Daily Activities
- Exercise and Physical Activity
- Going Out
- Grooming and Dressing
- Healthy Eating
- Incontinence
- Managing Medicines
- Oral Health
- Traveling Overnight
Communication
- Changes in Communication Skills
- Communication and Behavior Problems: Resources for Alzheimer’s Caregivers
Relationships
- Changes in Intimacy and Sexuality
- Helping Family and Friends Understand Alzheimer’s Disease
- Helping Kids Understand Alzheimer’s Disease
- Holiday Hints
- Intimacy and Sexuality: Resources for Dementia Caregivers
Safety
Caregiver Health
Legal and Financial Issues
Middle- and Late-Stage Care