Books Of Interest
Living Your Best With Early Stage Alzheimer’s: An Essential Guide
Author: Lisa Snyder, MSW, LCSW
A practical guide on coping with the diagnosis, effectively managing symptoms, finding meaningful activities, planning for the future, maintaining hope and humor, participating in research, and much more. This book provides invaluable wisdom and tips from people with Alzheimer’s and is a must-read for individuals with early Alzheimer’s and their caregivers.
Sunrise River Press, North Branch, Minnesota
Copies of the book are available by contacting Sunrise River Press
(phone: 651-277-1400 or www.sunriseriverpress.com)
Alzheimer’s from the Inside Out
Author: Richard Taylor
This collection of essays offers a glimpse into the world of the author, an individual who is living with Alzheimer’s disease. Health Professions Press, Baltimore, Maryland, 2007.
www.healthpropress.com.
Speaking Our Minds: What It's Like to Have Alzheimer's,
Revised Edition
Author: Lisa Snyder, LCSW
Seven individuals share their thoughts and feelings about living with Alzheimer’s disease. Copies of the book are available for purchase on www.amazon.com.
Still Alice
Author: Lisa Genova
This candid and powerful novel portrays a woman’s life after receiving a diagnosis of young-onset Alzheimer’s disease. Pocket Books, New York, NY, 2009.
1-800-288-4677 or www.simonsays.com .
Care Partners
Alzheimer's Early Stages: First Steps for Family, Friends, and Caregivers
by Daniel Kuhn, MSW, Hunter House Publishers, Alameda, CA, 2003.
1-800-266-5592 or www.hunterhouse.com.
A guide for family members and friends that focuses on early-stage issues.
Order Online
Still Alice
by Lisa Genova, Pocket Books, New York, NY, 2009.
1-800-288-4677 or www.simonsays.com and www.amazon.com.
This candid and powerful novel portrays a woman’s life after receiving a diagnosis of younger-onset Alzheimer’s disease.
The Forgetting: Portrait of an Epidemic
by David Shenk, Doubleday, New York, NY, 2001
www.doubleday.com.
A compelling look into the history, science, politics, and psychology of
Alzheimer’s disease.
At the Crossroads: Family Conversations about Alzheimer ’s Disease, Dementia, and Driving.
Provided by The Hartford Financial Services Group, Inc and the MIT AgeLab.
For free copies of this brochure, write to:
The Hartford At the Crossroads
200 Executive Boulevard
Southington, CT 06489
or contact www.thehartford.com/alzheimers.
Newsletters
Perspectives
Quarterly publication that addresses the interests, concerns, and reflections of individuals living with early-stage AD or other dementias.
Contact: Lisa Snyder, LCSW
Shiley-Marcos Alzheimer’s Disease Research
Center, University of California (San Diego)
Phone: (858) 622-5800
Available free by email: lsnyder@ucsd.edu
Websites
Alzheimer’s Disease Education and Referral (ADEAR) Center
nia.nih.gov/health/alzheimers
Sponsored by the National Institute on Aging (NIA), this site offers news on
research and clinical trials.
AlzStore
www.alzstore.com
An online store featuring products designed for people with all degrees of
dementia impairment.
Clinical Trials
www.clinicaltrials.gov
The U.S. National Institutes of Health developed this website to provide patients, family members, and members of the public with current information about clinical research studies.
**Dementia Advocacy and Support Network **
www.dasninternational.org
Includes information on advocacy, research, other dementias, and a chat room for people with early-stage Alzheimer’s disease. This resource is run primarily by people with Alzheimer’s or another type of dementia.
DementiaUSA
www.dementiausa.com
Grassroots approach to understanding Alzheimer’s and other dementias by individuals with a diagnosis. Includes advocacy information, a speakers list, and access to chat with other people with a diagnosis.
Websites In Other Countries
Alzheimer’s Australia
www.alzheimers.org.au
Information and fact sheets that can be downloaded for people with dementia.
Alzheimer’s Disease International
www.alz.co.uk
For information about services in other countries.
Alzheimer’s Society, United Kingdom
www.alzheimers.org.uk
The primary Alzheimer’s resource in the UK for people with dementia and their caregivers. Contains sections with comments by people with AD and families.
Canadian Alzheimer Society
www.alzheimer.ca
This web site has a very helpful section devoted to people with Alzheimer’s disease.
Information about free events in New York City
A website with listings of free things to do around New York City, including concerts, theatre, tours, and talks among other things. A monthly subscription of $2.95 (as of February 2013) is needed to access events information.
www.clubfreetime.com/new_york.asp